We have just set up a facebook page, www.facebook.com/PTCHD1, aimed at the families who have family members affected by mutations of the PTCHD1 gene. Our hope is that this may become a forum for families to share their experiences, and to be able to network with other families who are going through similar situations and facing similar issues.

Please forward this information to anyone you know for whom this facebook page may be beneficial.

cheers

John

John B. Vincent, PhD

Senior Scientist, MiND Lab at CAMH

Professor, University of Toronto